in january i got a much needed new wheelchair. i started using a new care agency too and they’ve become the most reliable to date. the next couple of months were spent getting used to my new chair, new carers and going to lots of baby appointments. after a few months of getting all the paperwork together because of her type 1, aubrey finally went off to nursery in march. just in time to welcome ethan to the world in april. when he was only a couple of weeks old we enjoyed our yearly trip to center parcs. i was looking for some new pa’s, as someone was leaving and i was under the weather too. that’s life i guess. i’ve got beaut of a baby boy, so who cares!
it was the perfect summer full of barbecued meat, in what was probably a record bbq year for us. june and july were spent glued to the tv, watching england’s best shot at winning the world cup in a generation. the stress, the celebrations and the goosebumps were real. we went on the run with bey and jay in london, which was goosebump worthy as well. soon our house became all about puppies. we had 7 pups running around the place, digging holes and fighting each other. all made easier by the fact it didn’t rain for 6+ weeks. we hit up some festivals, spent a weekend by the sea side with our favs and had a cuban themed party for alice’s birthday. and yes, all the puppies found new homes. by september we were getting tired and it was time for our holiday in lanzarote. it was a great holiday, we ate, drank, spent quality time with each other and enjoyed bonus sun.
october was spent getting aubrey’s peppa party ready and trying to get our heads around the fact she’s 3 already. next up was the action duchenne conference where i spoke for the second year. i went to london again for a job interview, unfortunately i didn’t get it, but it was an experience. it was all going well for the most part, until i got the dreaded chest infection that put me in the slammer. i didn’t get the blue light treatment, luckily they had me in before it got to that. what was going to be a few days though, turned in to almost 2 weeks and has made christmas time that bit more stressful. i missed the kids like mad, i just wanted to be home with my family. iv antibiotics, chest physio and god knows how many disgusting needles – fun. i’m a bit beat up, but i’m back. i want to say a big thanks to alice, my mum, my bro and my carer sophie for being so kind and helpful.
merry christmas to all the people who have been with us for 2018 and i wish you a great 2019. and to anyone else, up yours!